Are you there, Serotonin? It’s me, Suzanne.

[Trigger warning for suicide ideation, depression, mental illness, stigmatization]

I am a proud member of Prozac nation.

I refuse to solve my problems and deal with unpleasant emotions. I don’t treat my depression with good ‘ol hard work and bootstraps. I take the easy way out. I medicate. My moods are chemical, my personality is a façade created by neurotransmitters.

Ah, manufactured happiness.

***

All jokes aside, I love it when I’m told that treating depression with medication is the “easy way out.” Nearly forty thousand people commit suicide every year in the United States, and approximately 60% of those people suffered from major depression. Moreover, 15% of the population will suffer from clinical depression at least once in their lifetime, and 30% of clinically depressed people attempt suicide.

I’m sorry, what, exactly, is  the problem with using an “easy way out” of depression?

The idea that antidepressants are a lesser treatment is rooted in the narrative that depression is a personal failure rather than a disease. If depression is a personal failure, then you can correct it through hard work. Taking a pill to “solve” your mistake is a cheat, an unfair shortcut to redemption.

One of the consequences of ableism is our collective distaste for vulnerability, whether of the body or of the mind. We want to believe our bodies are under our own control. We especially want to believe that our minds are under our control. The idea that our brains could suddenly get sick, and we wouldn’t be able to switch them back to healthy is, frankly, terrifying.

So we lie to ourselves. We tell ourselves that depression doesn’t exist, that it’s an invented disease, that it’s just people complaining too much about bad moods, laziness or hard times. It’s easier than confronting the reality – than realizing that yeah, there are mental, and we can’t magically control them with the flip of a mental switch.

Unfortunately, the “make loud noises and hope the problem goes away” tactic isn’t exactly helping. In a 2011 study on why people with depression don’t seek treatment, sixteen percent said they perceived treatment as ineffective, while ten percent cited stigma. 21.2% of the people who drop out of treatment do so because of stigma, and 21.1% do it because of perceived ineffectiveness.

So yeah, when you start denying that antidepressants work at all, or when you say that depression is a made-up disease and the people who have it are weak… there are consequences to that.

***

This discussion isn’t theoretical for me. When I started taking antidepressants, I, like many people, didn’t believe they worked. I thought the “hard work” of therapy would fix my depression, not the “quick fix” of medication. Thus, when the antidepressants did nothing, I didn’t bother to alert my doctor.

It took a long courtship to reunite me with antidepressants. Our reunification took a the form of a classic, 19th century marriage plot:  we had to go through misunderstandings, affronts, passions, separations and despair before we finally found each other.

Pride and Prejudice, Elizabeth Bennett, Mr. Darcy, Ball scene,

1. Misunderstandings: Fluoxetine, part 1

It was my first year in college. I hadn’t wanted to go to my university – McGill – because I thought the school was too big and I would be isolated and alone.

And, since  17-year-old me was quite prescient, I was precisely right! I did feel isolated and alone.

I did have one small ray of light: I was in a play! Whooo! Unfortunately, the play had an end date. And on the aforementioned end date, I went back to my dorm, fell asleep, and didn’t come out for three months.

Okay, so I’m glossing over some details. I did leave to get food and go to the bathroom. But I didn’t go to class. I didn’t go outside. I stopped reading. I stopped contacting the outside world. I spent my days lying in bed, listening to music, and watching every single episode of America’s Next Top Model.

I wasn’t sad. I wasn’t filled with angst. I wasn’t even anxious – which, if you know me at all, is pretty rare. I was just numb. Numb, numb, numb, numb, numb. WHEEEEEEE, numb.

Hyperbole and a half, Allie Brosh.

Hyperbole-and-a-half, characterizing me exactly (http://hyperboleandahalf.blogspot.com/2013/05/depression-part-two.html)

Sure, I was failing all my classes, ruining my academic career, spending my days in bed and doing absolutely nothing. But I wasn’t worried!

I wasn’t anything at all.

To me, nothing was wrong. I was just incredibly lazy. That was the problem. Any day now, I would snap out of my incredible laziness and start working again. Bootstraps! Yes sirree. (This strategy did not work)

Three months in, I finally told my mother that I might be a “little depressed.” Because my mother knows that I have an *incredible* gift for understatement, she interpreted this correctly as “I might be really really depressed, oh god help.”

The mental health clinic at my school had a three-week waiting list for an appointment, and my health care coverage in Quebec was crap, so my parents flew me back to the United States to see a doctor. I took the two-page test medical practitioners give you when they think you’re depressed (some of you know exactly what I’m talking about) and my doctor took one at it before he said: “Uh… yeah, you’re pretty fucking depressed.”

Except he didn’t use the word “fucking,” and he did use the phrase “major medical disorder.”

Then the Doctor recommended that I take a medical leave from school (before I failed allllll my classes) take antidepressants, and start therapy. I was worried that therapists wouldn’t think I was depressed enough to take a medical leave (remember, I still thought I was just a “little” depressed), but the two therapists I saw back home couldn’t sign the “This student should really take a medical leave of absence” sheet fast enough.

Meanwhile, my doctor put me on one of the most common antidepressants: Prozac, AKA Fluoxetine.

Fluoxetine is an SSRI – a Serotonin Selective Reuptake Inhibitor. The way SSRI’s work is by inhibiting the reuptake/ reabsorption of serotonin, a neurotransmitter that regulates mood. Because your brain isn’t “reuptaking” the serotonin, there’s more of it around, which leads to more ‘happiness.’  At least, that’s the theory.

serotonin

My buddy Serotonin!

I took a medical leave from McGill. I came home. I took antidepressants. I started therapy. Therapy was good. Not being in school was good. Being home was good.

Fluoxetine… was not so good.

“It works pretty fast,” people told me. “It was pretty instant when I took it.”

Well… I wasn’t feeling anything. Not after two weeks. Not after six weeks. Not after two months. Therapy and lack-of-school were making me feel better, but I didn’t feel like the numbness – the nothingness – was gone.

Hyperbole and a half, Allie Brosh

Hyperbole-and-a-half again, encapsulating the feeling perfectly.

Then again, I’d never taken antidepressants before – and frankly, I didn’t really think they “worked.” Maybe the effect was really subtle. So I never brought the “not working” part up to my doctor.

When I went back to McGill at the end of the summer, I fell straight back into depression.

So much for fluoxetine!

Mr. Darcy, Pride and Prejudice, Marriage Plot, Elizabeth Darcy

Told you. It’s a complicated courtship.

***
This time I made it through the semester – somehow. It was a pretty terrible semester.

During the winter break, I found a new, less stressful, living situation. I decided to take only classes I thought I’d enjoy. And I stopped taking fluoxetine. I did not consult a doctor – I was in Montreal, and I didn’t have any medical authority to turn to. I just knew that the fluoxetine wasn’t doing anything. So I stopped.

Things got better. I lived in a good place; I went to interesting classes; I started making friends. By the end of the semester, I was in recovery.

***
So hey! you might be thinking. Doesn’t this story prove that antidepressants don’t really work, while therapy and changing your life circumstances does? You took antidepressants and things got worse, you stopped them and things got better. Case closed, right?

Not exactly.

Here’s the thing about depression: we haven’t quite figured out how the fuck it works. Some of it has to do with brain chemistry, but some of it is definitely due to environmental or psychological factors. And we’re not sure how those three interact, or which ones to “treat” first.

Let’s look at those factors in the case of my depression.

1. Environmental: I was in a university I hated. I had no support system. I had no community. I had no friends. There was nothing to be happy about.

2. Psychological: Without getting into a ridiculous amount of details, one of my parents was emotionally abusive (or, to quote my first therapist: “your parent is a real bully, huh?”), and the emotional abuse caused me to adopt some pretty maladaptive lines of thought. Like blaming everything on myself; thinking I was worthless, hating myself etc. The usual.

So these environmental and psychological factors were definitely fueling my depression. And then we get to:

3. Weird brain chemistry stuff.

Hey, look! This is what depression looks like.

We know that depression changes a person’s brain (see above). We think it might have something to do with the neurotransmitters that regulate mood, like serotonin and dopamine. It’s not entirely clear whether your brain chemistry gets weird, so you get depression, or whether you get depression, and then your brain chemistry becomes weird. Maybe it’s both. Maybe it’s different for different people. Probably it’s different for different people.

But right now, science is still a bit baffled. Yes, we’ve got antidepressants, but no one’s quite sure how they work, or why they work. We know they’re doing something, because they help a lot of people. But they’re also totally useless for a lot of other people. Some people respond terribly to one antidepressant, but do great on another one.  And nobody’s sure why! But we’re dealing with a pretty terrible illness, and if a tool works, we’re going to use it, even if we’re not sure exactly what it’s doing.

(This is, obviously, a massive oversimplification of the current state of depression studies)

So, to recap: since environmental and psychological factors were a big part of my depression, changing them – finding a better living situation, going through talk therapy, surviving the hell of my second semester – made a big difference. Enough of a difference that I went into depression-recovery even though the meds I was taking to target my brain chemistry weren’t working.

Here’s the flip-side: it took me over a year-and-a-half for me to recover from my first depression without the help of medication. And it was not a fun year.

Still, you think: all the medication and neurotransmitter stuff  I just talked about? That’s all theoretical. The proof is in the pudding. You got better without antidepressants!

Just wait. You’ll see: there’s more to this story.

***
 Affronts – Fluoxetine, part 2:

The next two years went pretty well. I switched my major, fell back in love with school, made friends, participated in a play, found my community. When I had the time and resources, I went to therapy.

And then: the migraines.

My migraines have always been problem, but in my junior year at McGill, they became a plague. I got them almost every day: blinding pain in the back of my skull, accompanied by dizziness and aching muscles.

I decided that the solution to my migraines was to overhaul my diet. Protein, I thought, was the key. Cut out all those carbs and sugars, and eat miles of protein instead. Oh, and I should start an exercise program. An hour at the gym every day.

I told myself these changes – the diet, the exercise – were for my migraines. But deep inside, I knew the truth: convinced I was too fat, I wanted to lose weight.

The migraines got a lot worse. Shockingly worse. Before I started going to the gym, my migraines would always go away with a good night’s sleep. Now, I would come out of the gym and have migraines that lasted for days. Nothing made them budge – not medication, not sleep, nothing.

And even though I knew the exercise was causing the migraines, and the diet was making it worse… I kept going.

That’s when the shit hit the fan: my migraines became light-sensitive.

I would go to school feeling fine, and after an hour under fluorescent lights, I would have a migraine bad enough that I’d need to go home immediately. I couldn’t handle any light – I closed all my shades, turned off all the lights, switched my computer off – and spent the day in the dark. I couldn’t do anything. When I tried, the pain would be so bad that I would start throwing up.

Not surprisingly, these circumstances took a psychological toll. Combine the pain from the migraines with the fact that I couldn’t do anything and you’ve got a recipe for a very unhappy Suzanne. Before I even realized what was happening, I’d landed back in the middle of the town of Total Numbington.

Once I stopped going to the gym, started eating better and kept spending all my time in the dark the migraines got better subsided. My residency in the town of Numbington, however, was far more permanent.

In a repeat of my first depression, I spent most of my time in bed, reading piles upon piles of X-Men: First Class fanfic. Fortunately, this depression didn’t seem as severe as my first, so I was still able to go to class and do work. My grades held steady.

I did not see a doctor in Montreal.

When I finally came home to Wisconsin, my parent had switched health insurance plans, and I could not longer access my long-term therapist or doctor. My new doctor asked me almost no questions before diagnosing me with depression again. Then she asked me if fluoxetine had given me any side effects when I’d first taken it.

“None that I noticed.”
“And did it help?”
“I’m not sure. I didn’t feel anything, but maybe it was subtle.”

She started me on fluoxetine again.….I am not a good advocate for myself in health situations. At all. Because I should have stopped her there and said “no, fluoxetine didn’t work, we need to try something else.” But since I still didn’t realize that you’re actually supposed to * feel * the effects of antidepressant, I just acquiesced to the fluoxetine. Again: telling people that antidepressants don’t work HAS CONSEQUENCES.

The doctor, of course, wins a gold medal in “wut” medicine for translating my “I’m not sure fluoxetine did anything” response into “let’s just throw more fluoxetine at the problem.” (In a shocking twist of events, fluoxetine did absolutely nothing. Who could have predicted that result, huh?)

Some good things did happen that summer. I found a great new therapist. I started a fairly effective migraine treatment. The lack of school-related stress from school also helped. I certainly wasn’t as depressed at the end of the summer as I was at the beginning.

Eventually, I saw another doctor. I brought up the fact that fluoxetine (still) wasn’t doing anything. She decided not to switch my medication since I was about to move back to Montreal.

“We don’t want too many changes at once.”

pride and prejudice, introduction

Fuck you, antidepressants!

I was pretty much on the “FUCK ALL ANTIDEPRESSANTS FOREVER” train by this point.

Passion, or Wellbutrin Part 1

I returned to school, still on fluoxetine. Though the fluoxetine remained useless, my depression was under control.

It was a good semester. I found a low-cost therapist. I started dating the Feminist Philosopher. I worked on my honors thesis, I enjoyed my classes, I wrote some popular blog posts.

But even in those good moments, part of me was still stuck in Numbington. And I was sick of it.

The next time I went to Wisconsin, I made an appointment with a new doctor. This was the third primary care doctor I’d seen in less than a year, and I was not optimistic.

But this time, I did my research. I wrote a list of concerns. I found a website with lots of information about antidepressants (Crazy Meds), and I read the relevant information. I knew enough that I could advocate for myself.

And this time, the doctor actually listened to me. Our appointment was supposed to be fifteen minutes long, but she spent an hour with me. We went through my list of concerns, discussing the various things that could be contributing to my mood, making a plan. She asked my opinion on various medications.

I walk out with a list of concrete suggestions and a prescription for Wellbutrin.

***
Wellbutrin, otherwise known as Bupropion, is not an SSRI. And it’s not… entirely clear how it works (you may have noticed a trend here).  Our best guess is that it inhibits the reuptake of dopamine and norepinephrine, two neurotransmitters that, like serotonin, work as mood regulators. Since I hadn’t responded well to an SSRI (fluoxetine), my doctor bet that targeting dopamine and norepinephrine would work better than moving on to another SSRI.

Ignore the last one; I couldn’t get rid of it.

Wellbutrin works quite well with depression. It also has very few of antidepressants most infamous side effects: it doesn’t (usually) cause sexual dysfunction, weight gain or somnolence (feeling tired all the time). It occasionally leads to weight loss – which some people may feel is a plus, but which could be a problem for others.

Crucially, Wellbutrin works particularly well with people whose depression is coupled with social anxiety (*raises hand*) and people whose depression manifests through anhedonia – an inability to take pleasure from activities you usually enjoy (*raises hand*).

Wellbutrin, in other words, was an ideal antidepressant for me. It wasn’t an SSRI, it had few side effects, and it tended to work well for people whose depressions were similar to mine.

I felt so much better when I walked out of the doctor’s office, in large part because I wasn’t just taking a pill on faith. The doctor had explained her reasoning, and I felt that she was addressing my specific needs, rather than giving me a one-size-fits-all medication.

Thus, armed with a new antidepressant and a whole lot of hope, I returned to Montreal’s cold embrace.

***
Reader, Wellbutrin worked.

pride and prejudice, gif, Elizabeth Bennet, Mr. Darcy

Two and a half weeks after I’d started the pills, I woke up at nine, lounged in bed for less than five minutes, got up and started making breakfast.

Wait. Pause. If there was something I’d never been able to do during my depressions, it was actually waking up. What the hell was going on?

It kept going. I started getting out of bed with energy in the morning. I was motivated to do things. I was procrastinating less. I’d finally started outlining my honors thesis. My appetite was back. My insomnia was gone. I planned for meals and sleep. And my anxiety, the electric beast perching on the back of my head day and night, seemed to have gone to sleep. I only felt occasional prickles.

Then, reader, I had to have a bit of a sit-down. Because if a medication could make my depression better so quickly and so radically, then maybe I wasn’t the problem.

Maybe I actually did have fucked-up brain chemistry.

Elizabeth bennett, gif

You think I would have figured this out earlier. But even though I believed that depression was a disease, not a personal failure, and even though I knew the mechanics of depression, and even though I knew I couldn’t just “snap out of it – subconsciously? I was pretty sure it was my fault. I bought into the “depression as personal failure” model.

Wellbutrin knocked a couple legs off that theory.

 Part 4: Separation, or Wellbutrin, part 2

A few weeks after Wellbutrin started working, I started fainting. Plus, I had a noxious combination of dizziness, nausea, constant-never-ending hunger and hypoglycemia.

… side effects.

I was in Canada, and I had no way to pop down to my doctor’s office in Wisconsin to figure out if Wellbutrin was indeed causing these symptoms. They weren’t on the list of common side-effects, but there weren’t a lot of competing explanations. At some point, my doctor stopped responding to my emails. I was cut off of medical advice. Any doctor I could have seen in Canada would have cost a whole lot of money, and would have zero knowledge of my medical history.

And meanwhile, I was dizzy/fainting/hungry/nauseated/ freaking out.

I stopped taking Wellbutrin. Cold turkey, no titrating. It seemed like the best option at the time.

Pride and Prejudice, Mirror scene, Elizabeth Darcy

I stopped fainting. The dizziness went away. And the depression, temporarily banished to the outer atmosphere, fell straight back home. With a vengeance.

Going from “doing good!” to “severely depressed” in a week was viciously painfulI spent a lot of the month of February and March curled up in bed, watching Elementary and drawing pictures of naked women (don’t ask).

But I did return to functionality. Depressed functionality, true, but functionality. All of my assignments got turned in on time. I missed minimal classes. I finished my honors thesis with time to spare. I graduated with first class honors. I made some big life decisions; I moved apartments; I dealt with bed bugs. I started playing video games.

Three people are now rolling on the ground, laughing at this Dragon Age joke. Credit: http://falseteethcyborg.deviantart.com/art/Shale-DESTROY-ALL-PIGEONS-198074293

I was depressed, but I was okay.

Part 5: Despair

Then I stopped being okay.

It was summer. I was no longer in school. I was facing a really massive change in my life: the end of college, the beginning of my adult life, a move to a terrifying new city etc. etc. etc.

And I was now entering year two of an untreated depression.

My depressions were usually characterized by numbness, exhaustion and lack of interest in the world. I did have moments of overwhelming sadness, but they were moments. They lasted twenty minutes to an hour at the most.

Now they lasted days. My numbness now translated into constant sadness and despair. I took frequent breaks during the day to lie in bed and cry. I cried myself to sleep most nights.

And then, for the first time in my near-five years of experience with depression, I experienced suicide ideation.

Feeling suicidal is Not Fun. Especially when it’s happening 2-3 times a week, and you’re too terrified by the feeling to tell anyone. I’d always been able to handle my depression. I didn’t know how to handle this. I didn’t know how to handle the overwhelming sadness and shame and guilt that made me want to die. I’d always felt like a burden; now I felt like so much of a burden that I just wanted to disappear, to make everyone’s life easier.

Hyperbole and a half

Yes, I wanted to live; I wanted to live desperately. I had so much to live for. But I also wanted desperately not to feel, to stop the pain of living, to end my constant guilt. In those moments, I felt trapped – I couldn’t see a stopping point to the pain. I didn’t believe there would be a stopping point. I just wanted it to end.

It never got bad enough that I started planning, or even considering options. But the “not bad enough” was more than bad enough for me.

I was so scared.

A friend and I were talking over facebook around this point, and she said, “I don’t understand. You have the Feminist Philosopher. You two seem so happy together. And you’re moving to NYC, and there’ll be lots of opportunities there. Why are you depressed?”

See,  that’s what’s so terrifying about depression. It’s not necessarily a response to something. It can be caused by psychological and environmental factors, but it doesn’t need to be. It’s an illness.

It doesn’t need to be caused by anything.

Which, when you’re lying in bed thinking about death, is horrifying. Because if it isn’t caused by anything, how are you going to make it go away?

Reunification, or Paxil

Paxil!

To cut a long story short: I found a way to get back to Wisconsin (for a ridiculous amount of money). I saw my doctor and left her office with a prescription for a new antidepressant: Paxil, AKA Paroxetine

Even today, I have zero idea why I was prescribed Paxil. It’s one of the more prescribed antidepressants, but it’s not one of the most effective ones – in a lot of trials, it’s not even as effective as fluoxetine, which we’d established didn’t work for me at all. It’s also one of the worst, if not the worst, antidepressant for side effects – especially for sexual side effects.

I… was not happy about that. I really like sex. Sex was one of the things that remained wonderful despite the depression.

And, on top of the horrible side effects, Paxil has a notorious discontinuation syndrome. If Paxil didn’t work, not only would I have to find a new antidepressant, I might also have to deal with withdrawal.

At the same time… Wellbutrin was supposed to work great and cause zero side effects. But it didn’t. So maybe I wouldn’t know how Paxil would work for me until I tried it.

So I tried it! Very unhappily, but I did!

tumblr_li9vljpWlo1qcrza7o1_500

I really wasn’t expecting much.

But taking Paxil, my friends, was a good life choice, because two-and-a-half weeks later, the fog just – lifted.

I know this whole “fog-lifting” thing sounds like a figure of speech, but it did not feel that way at the time. It was as though every color in my brain had reset to a brighter setting. Two weeks.

Pride and Prejudice, Mr. Darcy, sunrise scene

Antidepressants rising

I stopped feeling suicidal. I haven’t had a single episode of suicide ideation since I started taking Paxil. All my random crying jags ended. I mean, I still cry, but there’s always a reason – I’ve had a bad day, I’ve dropped a stack of books on my foot, I’m watching Catching Fire and I can’t handle the flashbacks to RUUUUUEEEE.

My moods made sense. I wasn’t randomly desperate or unhappy or mad. If I was sad, it was because something sad had happened. And my default was no longer “numb/sad,” it was “fairly happy.”

Yeah, when antidepressants work, they can really work.

A few weeks later, I moved to a new city – New York City, in fact. Unlike my first major move (to Montreal), this one did not provoke a new depression. In fact, I was pretty thrilled. I found a great job. I found a second job as a freelance book reviewer (!!!). I made friends. I explored the city. I spent lots of time with my boyfriend.

When people say that antidepressants squash creativity, I laugh and laugh. Sometimes I can stop laughing before they start talking about calming drinks.

Prior to Paxil, I was basically incapable of reading, much less writing. When I got to New York, I started writing again. I managed to publish a few blog posts – those had essentially disappeared during the Major Depressive Summer. I began writing fiction again for the first time in years. I taught myself how to spin yarn using a drop spindle. I started painting my nails. I took the GREs, I applied to graduate school, I got a 750 on the GRE in Literature. The three people who have taken that test are now suitably impressed.

I started volunteering.

tumblr_mayaoxQWRA1rrghlso1_500

Dear Paxil:

… yeah, I’m pretty sure the antidepressants aren’t destroying my personality.

Okay, let’s talk about the bad news – the side effects.

I’ve got a couple. The usual vivid dreams – serotonin is notorious for this one – but vivid dreams don’t really bother me. I’m sleepier, although I can’t tell whether this comes from the paxil, or from all the migraines I’ve been getting. I now shake my leg when I’m working at my desk – again, I can’t tell if this is a side effect from paxil, or if I’ve just picked it up in the last few months.

I haven’t had any sexual side effects, which is BLOODY FANTASTIC. My sex life is great, thanks for asking!

I have gained a lot of weight. Side-effect fatty over here! Obviously, it is possible that this is an unrelated weight-gain, but the evidence seems to indicate that it stems from the Paxil. I’ve also been eating less and exercising more since I started Paxil (it’s amazing how not being depressed can help you get out of the house/cook food). And I gained weight on my other SSRI, fluoxetine, which I lost it when I stopped taking the drug.

I think I’ve gone up a couple dress sizes. Am I super-happy about this? Nope!

I am a product of our society, and although intellectually, I don’t think there’s anything wrong with being fat(ter), I struggle with a shit-ton of body issues. Plus, you know, having to buy new clothes sucks.

At the same time, I’d rather be bigger and happier than thinner and depressed. At least when I’m in recovery, I have the emotional resources to deal with body-image issues. When I’m depressed and thinner, I still hate my body, but I have no capacity to deal with it.

So. On balance, I’m quite pleased with Paxil. It took three medications, but I’ve finally found one that puts me in recovery, and where the side effect are tolerable.

Part 7: The end of the courtship

Having been through the whole courtship and marriage plot shindig, let me tell you, I’ve learned a lot about antidepressants. I know how to make a relationship with serotonin and other neurotransmitters work.

Let me share my secrets.

1. If you don’t feel antidepressants working, they’re not working

I wasted an incredible amount of time taking fluoxetine because I thought it might be working even though I didn’t feel any different. Now I know better: if you don’t feel an antidepressant working within six weeks, it’s not doing anything.

You definitely want to give it six weeks (although many doctors will want you to check in after three weeks to see if they should up the dose) because some antidepressants take time to work. But if you’re not feeling anything, or if what you’re feeling is so subtle that it’s meaningless, you have the right to bring it up. There’s nothing wrong with you because a treatment didn’t work. And you are not obliged to keep quiet about it to make the doctors feel better or to avoid inconveniencing anyone.

Moreover, just because one dosage of one antidepressant doesn’t work does not mean that antidepressants are wrong for you, full stop. After using fluoxetine, I was pretty sure antidepressants did nothing for me. Five years later, I can say with certainty that some antidepressants do a whole lot for me.

Is it a pain in the ass to deal with the trial-and-error of finding the right medication? Absolutely. Just like it’s a pain in the ass to do the trial-and-error of finding a new therapist.

But one experience with antidepressants does not seal your fate with psychiatric medications.

2. Doing your own research is a good idea.

Understanding how antidepressants work and having my own internal database of medications, their side effects and their efficacity went a long way to reconciling me to the idea of psychiatric medications after my bad experience with fluoxetine.

Obviously, it’s important to remember that what you find in your research doesn’t determine how you’ll react to any given antidepressant. See: my experience with Paxil. But it can help demystify the process and allow you to advocate for yourself in the doctor’s office.

You can also get an idea of what side effects are unacceptable to you. Heightened anxiety? Cognitive problems? Somnolence? Loss of libido? If you give doctors an idea of what you don’t want, they can try to tailor their prescription.

At the very least, if you’ve done your research, when your doctor says something you know is false, you can run. 

(I’m personally a big fan of the irreverent and comprehensive website Crazymeds. It’s got a ridiculous amount of information on various psychiatric medications (not just antidepressants). It’s also run by crazy people, for crazy people, which I find reassuring))

3. Advocating for yourself is important, but is also paradoxically the hardest thing to do while depressed.

Finding the right antidepressant involved a whole of lot of me standing up for myself, demanding that doctors help me and refusing to believe that it was all my fault.

In other words, it took a lot of investing in myself.

But there’s a reason it took me five years to get to that point. Because when you’re depressed, you have nothing to invest in yourself. Your resources are gone.

And depression, meanwhile, is actively convincing you that there’s no problem at all… except you. You’re the problem. You’re not sick, you’re just lazy/stupid/etc.

Which is why:

4. Getting good treatment involves supportive, continuous healthcare.

 You know when I started getting good treatment? When my doctor started listening to me. That’s how I got prescribed Wellbutrin. That’s how I got prescribed Paxil. Before then, I’d been through two separate doctors who either hadn’t listened to my problems, or hadn’t inquired further about my experience with antidepressants when I said they weren’t doing much. That… was not okay.

Mental illnesses are a chronic problem, and they need continuous care. A prescription is not the end. Often, problems will arise, the dosage will need to be adjusted, side effects will appear, or the medication won’t work at all. Healthcare here needs to be seen as a long-term process, both by the patients, and by the doctors. My biggest problem with recovery has been my lack of continuous healthcare. Even when I found medications that worked for me, I couldn’t go see my doctor for a regular check-in, because I was in Canada and she… wasn’t. I probably would have found the right antidepressant a whole lot faster if I were able to access healthcare more often.

But unfortunately, access to healthcare was geographically and economically impossible for much of my college life. (It’s still economically impossible for me at this point, which… is great! (not))

5. Who gives a shit if Antidepressants Are the Easy Way Out?

So, are antidepressants the easy way out?

Time for a rant: The idea that antidepressants are an “easy solution” to depression is such bullshit. The flip side of that coin – that therapy, exercise, diet change etc. and tackling the “root psychological problem” – are the “correct” way to solve depression is also pure BS.

Both these ideas are rooted in the narrative that depression is a personal failure, a mistake you can “correct.” Some people choose the “easy” way out and just take pills, which means they never “correct” their personal failures. Others pull themselves up by their own bootstraps by doing therapy and running 30 miles a day. Those people are actually “correcting” their personal failure by doing the hard work of personal redemption.

Yo, depression isn’t a tragic flaw in a shakespearian tragedy. It’s a disease that fundamentally changes the way your brain works. You do not “deserve” to be depressed. You aren’t depressed because you took the wrong path in childhood. You aren’t depressed because you’re lazy. You aren’t depressed because you’re weak. You’re depressed because you have an illness.

And since depression is an illness, not a character flaw, it responds to treatments like an illness. Which means that everyone’s depression will respond differently to therapies and treatments. No treatment is inherently better or worse than another. If therapy helps you, that’s great. If antidepressants help you, that’s great. If a combination of the two is an optimal solution, that’s fantastic.

Important side note: since depression is an illness that no one really understands, you won’t know what works for your depression until you’ve found it. There’s no great way to guess what’ll work for someone, which is why we shouldn’t assume that one treatment is better than another for any particular person (unless, obviously, there are allergies/side effect issues/other health factors).

Finally:  Who the fuck cares about whether something is “easy” or not when you’re severely depressed? Seriously, this is life we’re dealing with, not an endurance contest. There is no prize at the end for the person who Worked The Hardest To Solve Their Brain Chemistry Problems.

***

Disclaimer: This was my long, long, long post about my personal experience with antidepressants. As a reminder, it’s… my experience, not anyone else’s. And there are a shit-ton of problems with antidepressants beyond the fake issues people invent. Hey, it’s harder for people of color to get correctly diagnosed! Doctors make all kinds of terrible mistakes based on stigma! We don’t have the healthcare structure necessary to make sure that people who need treatment *get* continuous treatment!

Tons of problems.
Antidepressants being “easy” isn’t one of them.


“We need to start a movement”: My brother and I talk about middle-school bullying

[Trigger Warning for bullying, violence, homophobia, harassment, suicide]

I usually apologize for long blog posts. I have a short attention span; I’m sure my readers do too. But I’m not apologizing this time.

This post is different.

As most of my regular readers know, quite a few of my blog posts are inspired by my younger brother, R. Mostly because R. is awesome, and has great ideas.

This post is different.

Two years ago, during our winter break, R. and I went on a long walk through the streets of Madison. It was night, it was cold, I had heavy bags, but we were enjoying ourselves. We were talking about important things – books, our parents, movies, school etc.

At some point, I asked R. if he liked having an iPod.

Yes, he said. I listen to it on the bus back from school. After the day is over, I often feel frustrated and upset. So I turn on my iPod and listen to Adele or Coldplay, and it helps get rid of the stress.

Now usually, my brother likes school. I mean, obviously, there are good days and bad days and good teachers and bad teachers, but for the most part, he really enjoys it. He loves learning; he has lots of friends… school is good.

So hearing that R. was often frustrated or upset after a day at school was a huge red flag for me – and I asked him why.

That’s when he told me about bullying.

***

Discussions of teen bullying have been everywhere recently, from Lady Gaga’s anti-bullying campaign and Dan Savage’s It Gets Better movement, to worries about cyberbullying and the surge of teen suicide attempts. The most recent government survey indicates that 28% of kids in grades 6-12 have experienced bullying. I wouldn’t be shocked if it were more.

I knew bullying existed. It was still a punch in the gut when R. told me it was happening in his school.

I had a very mature reaction to the situation. My brother was going to drop out of school and never, ever go there again. And if that wasn’t feasible, I was going to drop out of college and follow him around with a baseball bat.

…yeah, that was a pretty terrible plan.

Eventually, I realized there wasn’t anything I could do except listen and offer advice. My brother, after all, isn’t getting physically bullied. He isn’t even getting harassed that much – at least in comparison to other students. He just goes to a school where bullying is constant and ubiquitous. He sees it happen every day. Sometimes it happens to him. Often it happens to his friends.

Over the past two years, I’ve listened with increasing horror to my brother’s stories. The kid whose facebook and email was spammed with “accusations” that he was gay. The guy who pushes other kids into lockers. The insults students yell at each other. The teasing. The shunning. The ubiquitous, constant, malicious gossip.

“You’re gay.” “You’re stupid.” “You’re fat.”

It never ends.

No wonder R. needs his music to calm down every day. It’s impossible not to be affected by it.

I can tell. My brother doesn’t enjoy school as much as he used to. He’s more stressed, and it’s not just because of homework or teachers. He often comes home angry and frustrated, needing to talk about the latest catastrophe.

I remember telling R. that Mitt Romney, the Republican presidential candidate, bullied a closeted gay student when he was in prep school. I’ve rarely seen my brother that outraged.

Worse was when R. saw the Rolling Stones article about the Anoka-Hennepin school district, where students who appear to be LGBTQ are constantly harassed, teachers are forbidden to offer them help and nine students committed suicide within two years. Reading the article, he went dead silent. After a few minutes, he turned to me and asked, in a tone I’ll never forget:

“How can people let this happen?”

[Although I highly recommend the article, it is extraordinarily difficult to read. Warning for homophobia, bullying, suicide, violence]

Bullying poisons children’s lives. It destroys their safety. Sometimes, it even kills them.

Not to mention that it’s ruining their education. No matter how good a teacher or a school is, kids aren’t going to learn well if they’re constantly scared.

I think the anti-bullying campaigns are good, I do.  I’m glad bullying is finally getting discussed in the media. I’m glad people are starting to see it as a valid issue. I’m glad they’re trying to find solutions.

But sometimes, I look at the pundits talking and the teachers worrying and the celebrities campaigning, and I worry that the kids voices are getting lost. Adults have found a problem, and adults will impose solutions.

One of the most important things we can do is to listen to students. To provide a space for them to tell us their stories, their experiences, their ideas. After all, it’s their fight. We’re not going to end bullying without them.

So before my brother left for France, I interviewed him about bullying at his school. I used my computer to record our discussion. With his permission – and his help – I’ve now transcribed the recording, with a few minor edits for length and for clarity.

We need to hear more of these stories.

A few important notes: My brother is entering the eighth grade and goes to school in Madison, Wisconsin. He’s male, cisgendered, white, and currently identifies as straight (I say “currently” because he’s twelve – any conclusion about his sexual orientation is premature at best). I’m a college student now, but I went to the same middle school he now attends, and he’ll be going to my former high school.

Also important: no real names were used in the interview – I swapped out any names my brother mentioned with pseudonymns.

***

CD:  Testing one – two – three. Okay, so… We’re recording as of now.

R: Wait, how does that thing work?

CD: It’s just recording our voices.

R: That’s so creepy!

CD: *laughs* You want to listen to this section back?

R: Sure. *rewind and listen*

CD: Aha! We’re recording again. First, I want to thank you, R. for agreeing to get interviewed by me.

R:… you’re welcome? *laughs*

CD: Yeah, you don’t have to act like we’re in a formal interview… everyone knows we’re bizarre. Anyways. The idea for this interview came when I asked you what kind of blog post I should write next, and you said I should write about bullying in middle school. And I said – well, I don’t know that much about bullying in middle school. Maybe I should ask you.

R: Yeah. That sounded like a good idea.

CD: It was interesting for me over the past two years or so because middle school… was not the best time of my life. But I didn’t get bullied in American middle-school, and I don’t remember other people getting bullied either. Which doesn’t mean it didn’t happen, but I don’t remember it at all. I did get bullied in French middle-school and that was really unpleasant; it just didn’t happen when I went to our American middle-school. But you’ve been saying that now there’s a lot of bullying at your school.

R: But wait. Didn’t you get bullied when people made fun of you for being French?

CD: Yeah. But that was mostly in high school, actually. And wasn’t… constant. It just happened sometimes.

R: Teasing?

CD: Exactly. Which I gather is a big problem at your school too –

R: Yeah, there is a lot of bullying at my school. And the teachers aren’t solving it, even though they’re trying to. They don’t have the right approach.

CD: What’s their approach right now?

R: Doing a two-million dollar anti-bullying program called Hawk talk –

CD: Wait – Hawk as in the bird?

R: *rolls eyes* It’s our school mascot.

CD: *laughs* Oh god. That’s so –  Okay, okay. Hawk. So what’s the Hawk Talk?

R: Pretty much – every morning, you get thirty minutes extra with your homeroom teacher. And your homeroom teacher opens up this anti-bullying booklet and then talks about stuff we’ve covered millions of times over the years. Again. And Again. And Again. It’s really cheesy. No one likes it. And then the teacher make you fill out worksheets about what you would do in a bad situation. But nobody actually pays attention.

CD: Yeah.

R: They also have bullying forms, so if you’re bullied you can fill it out. They say it’s confidential, but it’s really not. I’m sure tons of people are afraid that if they’re bullied and they fill out the application, the bully will –

CD: Find out.

R: Find out and… kill them.

CD: Aaaaah! Seriously?

R: Well, not kill them. But you know what I mean.

CD: Yeah. Retaliation. So… what do they talk about, the teachers? Is it just telling you that bullying is bad? Or –

R: Exactly. They just talk about how bullying is bad. But everyone already knows that – and they still do it.

CD: Right.

R: They’re covering the same material. Nobody really cares anymore. And bullying hasn’t gone down by a significant margin since they started. It’s not working. So they need to find some other way of stopping bullying.

CD: I though – one of the things that’s really striking for me – when I listen to you talk about bullying, it seems like it’s everywhere. And it seems like it’s everyone, almost.

R: I think a lot of people bully and they almost – don’t realize it. I’ve seen kids saying that the new law in North Carolina that’s prejudiced against gay rights is bad – and then I hear the same kids turn around and taunt other students for being gay.*

[*He’s referring to the newly passed North Carolina law that bans gay marriage]

CD: Seriously? Wow.

R: Right? It’s… very weird. People don’t realize they’re being bullies; they don’t realize that they’re being that hurtful. And, you know, if you make enemies of popular kids, they’ll gossip about you. If you made enemies of some people, they spread information throughout the school, and you turn into someone to be made fun of. It’s happened to several kids and – it’s really horrible.

CD: Right.

R: It’s  – it’s a little like – you know, you make any little mistake. If you accidentally push over a popular girl, she might spread gossip about you to everyone else, and within five minutes, people will be laughing and pointing and you won’t even know why. So that’s a really big problem.

CD: Yeah… *long pause* Now we’re smiling at each other like dolts, because we do that all the time.

R: I’m smiling because you’re weird.

CD: Too true. Moving on. From our conversations – it also feels like almost everyone gets bullied.

R: Um –

CD: Or am I misreading?

R: No, I’d say that’s true. Almost everyone gets bullied, but some people get bullied a lot more than others. Especially kids who aren’t popular.
You know, right now it’s like a hierarchy. When students try to move up in the world, they get made fun of a lot. I see this at school all the time, and I saw it at my last camp. There was a kid who joined a group of people – because at camp, people divide up into groups, which is very similar to what happens at school. He was trying to be friends with them, and they would act totally friendly, but when he left, I would overhear them saying “oh, he’s so weird” and stuff like that. So people started looking at him funny, and more people started making fun of him. I was one of his other friends, and luckily, he started moving away from that group.

CD: That’s good.

R: Right. But that doesn’t always happen. Bullying victims – often they don’t get support, even from friends. And at school, people can pretend to be nice, but they can be horrible behind your back – make fun of you, and bully you.

CD: I heard about one kid at your school – people started spreading a rumor that he was gay, and it was all over – on Facebook, email etc. And everyone was talking about it behind his back.

R: That’s happened two or three times.

CD: It’s happened more than once?

R: Yeah. And I feel horrible for those people, because – first of all, being gay shouldn’t be a bad thing. Second of all – I mean, who is cruel enough to do that? It’s horrible.  The poor guy, he’s probably being made fun of all the time. I mean, I’m sure he was really damaged, especially if it was all over facebook. I don’t have a facebook, but I know if you put stuff on facebook, two hundred people know within two hours.

CD:  The joys of the internet.

R: Yes.

CD: And I know – you’ve been called gay once or twice.

R: I was doing a presentation for Health and Wellness, and I was being falsely cheerful, because I hate Health and Wellness.

CD: *laughs* Ouch.

[I hated Health and Wellness too, for the record]

R: I ended the presentation, and someone shouted out “gay.” But it was really nice – you know, my feelings were hurt, absolutely. But the rest of the class just told that person they were being mean, and to stop it. Which was really nice, and that actually helped me. There are some things where people realize that you’re being bullied and they –

CD: And they tell people to stop.

R: The school slogan is “Name it, Claim it, Stop it.” Name the bullying, tell the bully what it is, and say stop it. Which… sometimes works, but most of the time, the bully totally ignores it. It’s hard – you see some people try to stand up for others, but it’s really hard to stand up against a bully who is popular, or who has a lot of friends who are bullies.

CD: Yeah, because you don’t want to be the one who becomes bullied.

R: Exactly. That’s risky.

CD: It seems like the word “gay” has sort of become – the problem isn’t that people are gay. It’s just a fact of life. Some people are  gay, some people are straight, some people are bisexual, some people have other orientations. The problem is that the word has become –

R: An Insult. It’s like saying “you’re stupid.” Or “You dress weird.” It’s pretty much: “You dress weird, talk weird, are really strange” – all in one word. That’s what it’s become, and that’s just not good.

CD: Yeah.

R: Bullying – comes from a lot of things. One of them is, if you’re bullied, the bully might actually be afraid of you. Bullying is a lot like, you know -racism and sexism. It’s a lot because people are afraid of people who are different. So they discriminate. Or they bully.

CD: I know you have a friend who is openly gay. Does he get bullied more than other students, or are people okay with it?

R: Well, actually, he’s not openly gay.

CD: Ah. Hold that thought.

R: Yeah. He has told a couple people – his close friends – and we are totally fine with it.  But if he was openly gay… I think he made a very good decision in not coming out. Being openly gay is a good thing. And people should absolutely feel safe enough to do that. But if you’re in middle school, and especially in my school, if you were openly gay – life would turn into a living hell for you. For sure.

CD: WOW.

R: Absolutely. People you thought were your friends would probably just – be repulsed.

CD: You know what I find really disturbing about this is… we live in Madison. And Madison is like, socialist hippieville. We’re one of the most liberal places in the country. So if even here, it isn’t safe to be gay, or lesbian or bisexual in middle school, that’s really sad.

R: It is really sad. And even when people believe gay people shouldn’t be discriminated against – as I said before, the guy who was against the North Carolina law also makes fun of kids by calling them gay. It’s like – what the hell is wrong with you?

CD: Do you not realize you’re contributing to the problem?

R: Exactly. And you know, I think the adults really don’t discriminate against gay kids – the adults in our school. But with the kids, it’s become this thing. You know, you’re gay – that means you’re different. I mean, racism is still present in the school, but it’s not that present. It’s a very minor problem. Well – what I mean is, in terms of insults – people aren’t made fun of for their race. Now “gay” is the new big insult.

CD: It feels like –  if someone were to make fun of someone else for being Black or Hispanic or Asian – that would not be cool. But it’s still sort of cool to make fun of people for seeming gay.

R: Calling someone gay is – now people think of it as, it’s not that big of a deal to say. You won’t get in trouble. If you’re racist towards someone, the teachers will immediately – kill you.

CD: *laughs*

R: It’s over. But insulting someone for their sexuality… you won’t get in trouble. And in some schools, I know teachers aren’t even allowed to express their opinions on that, or help kids who are being harassed for being gay (he’s referring to the Rolling Stones article). They can’t tell someone to stop calling another kid gay.

CD:So – people get made fun of for being or acting gay – whatever that means. What other kinds of things do people get made fun of for?

R: Being gay – or acting “gay” –  is the top thing. But, after that, it’s a lot of small thing. Appearance is big. If you dress different, or you dress “weird,” you’ll get teased. If you’re fat, you’ll get teased. Even if you’re not fat, but you just look – different – you’ll get teased. If you do something wrong, you might be teased about it too. Bullying is a major problem in our school, but most of it has to do with gossip.

CD: That’s interesting.

R:  People think it’s just a girl problem, but it’s really not. I think the story about girls gossiping more than boys might be sort of true – I don’t know, I’ve never been a girl – but boys still gossip a lot. I think the blame is just about equal. Girls do gossip a lot; boys gossip a lot –

CD: The girls gossiping more than boys might be a bit of a stereotype.

R: I think so. I mean, I know boys gossip a lot. It’s horrible, because the gossiping thing – one thing will spread around the school in five seconds. It goes very fast, because you have tons of people.

CD: And gossip is really hard to fight because – it’s a form of bullying, and it contributes to bullying, but it’s also a way people bond, and it’s often an important part of people’s friendships. You want to be able to tell your friends secrets.

R: Right. It’s a big thing, to be able to trust someone with your secrets. But at my school, you have to make absolute certain, if you’re going to tell someone something, you have to be 120% sure that they’re not going to tell anyone. If you 100% trust them – that’s not good enough.

CD: *laughs* Wow

R: One of my friends told me who he had a crush on, and I didn’t tell anyone. He told another close friend, and that person didn’t tell anyone. He told another person, but he made a mistake, and that person told everyone.

CD: Oh no!

R: In a matter of days, he thought that his crush now knows that he likes her, which… is horrible. Then that makes the whole situation really awkward. And of course, people were making fun of my friend for liking this girl, and they were making fun of the girl too. So yeah. Gossip is huge. And things get twisted as people tell them to each other.

CD: Right. It’s not “Jess likes Samira” anymore, it’s “Jess went up to Samira and asked her to get married.”

R: Exactly.

CD: I know there were times when you didn’t want to go to school – I mean, okay – there are lots of reasons you don’t want to go to school. But there were times when it felt like the atmosphere was so negative, you just didn’t want to be there.

R: When people are being extremely mean to each other, and bullying is super common, and my friends are being bullied – yeah, I don’t want to be there. One thing that happened recently, for example: a guy who I knew was a bully became friends with my best friend Joseph. And I was… I didn’t judge Joseph, but I was sort of worried. And one day, Joseph was really sad because this friend started to harass him. He started being mean to him, and tease him. Joseph asked him to stop, but the guy didn’t. So Joseph said, if you don’t stop making fun of me, I can’t be friends with you.  And the guy was just like – it doesn’t matter, I have lots of other friends. That was really bad. It was horrible, actually. Even after Joseph stopped hanging out with him, the guy just kept harassing him. And Joseph was upset for a really long time.  So it’s really hard to trust people.

CD: I can imagine. Question: do people get physically bullied? Like – pushed, punched, poked, whatever.

R: Physical bullying is not that common at all. It’s very rare. It’s the kind of bullying – it’s old school bullying. Back in the day, if you beat someone up, the teachers didn’t care. But now – if you beat someone up, you’re suspended, you’re expelled – you get in deep trouble. On the other hand, if you just call someone names, nothing will happen to you. And that brings me to the other kind of bullying that’s a huge problem at our middle school, and that’s – cyberbullying. It’s extremely common at our school. It’s probably even bigger than in high school. Maybe. I don’t know, because I’ve never been to high school. But I know you have – so was there a lot of cyberbullying when you were in high school?

CD: There wasn’t with me. But when I was in high school, I wasn’t really involved in the online scene. And things like facebook were new back then, so I think people hadn’t figured out how to take full advantage of it for its bullying potential. How does cyberbullying work at your school?

R: Well, obviously the trolls. People who just go on your facebook or your email, and write “I hate you, I hate you.”

CD: You guys already have to deal with trolling?

R: Yeah. And a lot of it is on email. People send tons mean emails to other students. And I’ve heard that on facebook, there’s a lot of bullying.

CD: Like – how? People writing mean things on other people’s walls –

R: That. That, and also, negative information can be spread very fast that way.

CD: Yeah. Like “Hey R. I hear you’re in love with your teacher Mrs. Mendelsohn.”

R: Aaaah. CD… that’s weird. Ewwwwwwwwwww. Anyways. What was I going to say?

CD: How would I know? Oh, right, my secret power as a mind reader.

R: *rolls eyes* My point was that my dad thought I had facebook at one point, and he was worried because he knew a lot of cyberbullying at my school. My parents have received emails about cyberbullying incidents. And on facebook, you’re extremely vulnerable to cyberbullying. And now that everyone has cell phones – it’s texting. People texting all the time, especially mean gossip. So it spreads extremely quickly.
And now, it even spreads to people who aren’t at your school – who are at other schools.

CD; Right. So you could just show up to another middle school, and say “Hi, I’m R.” and everyone would be like “Oh, hi R. We know everything about you! Like how you’re married to Mrs. Livingstone! And you’re in love with… Miguel and you’re gay and…”

R: Exactly. And I think it’s more harmful because when you’re on the internet or your cell phone, people say meaner things. You might not call someone stupid to their face, but you might send them an email or a text that says “you’re stupid” or “you’re ugly’ or “you’re gay.”

CD: Right. So, let’s talk about solutions. Or the current lack thereof. Right now, your school has a big anti-bullying campaign and it’s been going on for what – two years? Three years?

R: Something like that. A while.

CD: And it doesn’t seem to be doing very much.

R: Nooo.

CD: It just seems to – almost – it makes everyone bored.

R: It might even make it worst, if possible.

CD: It almost makes it cool to be a bully, because the adults are uncool.

R: Exactly.

CD: Do you think the adults understand the bullying problem? Okay – let me rephrase –

R: One thing I don’t think the adults understand is the hierarchy in the school. Even if the bullying stops, you will be regarded as a lower being and gossip will be spread about you. The problem is that the hierarchy makes people unsafe.

CD: Right. I think maybe – adults understand physical bullying. And they understand if someone were constantly called stupid or gay. But stuff like gossip, I don’t think they necessarily see why –

R: Even when someone is called stupid or gay, I think it’s really hard for adults to stop the bullying. They can’t give the bully a valid threat or a good reason to stop.

CD: Okay. That’s a problem. Actually, now that I think of it: you know the story you told about the kid calling you gay in front of the class? I find it really striking that it was the students who shut him down, not the teacher. Did the teacher say anything?

R: No, she didn’t say anything. She didn’t try to stop him.

CD: Well – urgh. Because if your peers hadn’t stood up for you, it would have made it seem like name-calling was okay.

R: I agree. The thing is, I don’t think the adults know how to help people who are bullied. And I think the best thing adults can do is strengthen the victim. To get the victim to a place where they can feel safe standing up for themselves. It’s not that they need to feel strong enough to stand up for themselves, they just have to feel safe. But right now, our school isn’t safe. Some people are very vulnerable. So we also need to work on ways to get the bully to stop, and that’s… difficult. Bullying is a problem where there might not be a real solution.

CD: I think – I think bullying is a problem that requires a lot of work and it requires a lot of different small solutions.

R: Exactly. I think it’s not something where there won’t be one magic pill that solves everything. Unfortunately. One bullying program is not going to do much.

CD: Are there times where you’ve seen, with your friends or your peers, where you’ve seen bullying get stopped? Like the incident where you were called gay, and your classmates shut it down.

R: Yes. That was one instance where it got stopped.

CD: Can you think of other ones?

R: Unfortunately… no.

CD: That’s bad.

R: It’s possible, but I’ve not been there. I think a lot of people are afraid to stand up. The exception is:  when something is really mean, people do stand up. The problem is, when it gets really mean, it’s usually after the bullying has been going for a while. So the victim will be grateful for the help, but they’ll still be hurt. A lot. The damage will already have been done. What you need to do is stop the small stuff. We have to stop it when it starts.

CD: I think one of the things it has to be is – it has to be a really individual commitment. Which is hard. Especially with things like gossip. It has to be an individual decision – something like: “I have decided that I’m not going to gossip.” And then, telling other people, if they try to gossip with you: “Guys, I love you, but I don’t want to gossip with you, because I know that that often hurts people’s feelings, and I don’t want to be part of that”

R: Yeah.

CD: Yeah, sorry. I know I sound really cheesy right now. There are better ways of saying it. “Let’s not gossip, let’s go play Frisbee instead.”

R: Right. Exactly. *laughs* Playing Frisbee solves all the problem.

CD: It’s how I solved all my problems. It’s not that we need to sit around and say “we love everyone and want to be friends with everyone.” It’s just getting to a place where people aren’t feeling attacked all the time.

R: And the individual commitment – it’s hard to be committed when you’re a bully.

CD: Well, you’re certainly committed to something… you’re just not committed to stopping bullying.

R: No duh. Being individually committed to stopping bullying would really help – if people would just try to stand up for people who are being bullied. And the more people that do that, the less weird it’ll seem when someone stands up.

CD: I think that’s part of it. Right now, there’s almost a peer pressure to bully. Or at least, if you’re not going to bully, not to stop people from bullying. And instead, there needs to be a peer pressure to stop people from bullying.

R: Exactly. More people just need to start doing it. Start trying to stop it.

CD: And I think that’s really tough – don’t get me wrong.

[At this point, we’re interrupted by two phone calls. Then our stepsister asks if we want to go to the beach with her. We say yes and resume recording after our beach trip.]

CD: And we’re back, ladies and gentlemen and listeners of all ages and genders. Before I forget – one of the things I said to you while we were at the beach, which I think is interesting more generally is – in social justice, or in anti-oppression politics, we talk a lot about how there are people who believe that words don’t matter. They think the only kind of violence that can hurt people is physical violence. But it seems like that’s really not true with bullying.

R: Yeah…. no. Those people are just wrong in every possible way. So many problems, so little time. I’d say that words hurts people a lot more than violence does, especially these days. Gossip, cyberbullying – those are all words. And they really do hurt people.

CD: And if words didn’t matter, you could just go around and say “Who cares who calls me stupid?” But it does hurt, and it does matter, and it does make a difference.

R: There’s an old saying that “sticks and stones will break my bones, but words will never hurt me.” But that’s wrong, ladies and gentlemen. That’s just wrong. There are things that people have said to me that still hurt, a year or two later.

CD: I agree. I’ve heard the saying re-worded as “Sticks and stones will break my bones, but words can scar me forever.”

R: Yeah. I think that’s a much more accurate phrase.

CD: Before we left, we were talking about solutions…

R: Yes. We were. And we were talking about how individual commitment is really important. and how we should stand up more for victims.

CD: But standing up for others is hard if you yourself feel vulnerable.

R: It’s a vicious cycle, because you get bullied, so you feel vulnerable. So you don’t stand up for other people. So more people get bullied, and they feel more vulnerable, so they don’t stand up for other people. So more and more people are bullied, and there are more and more victims. You have to get out of the cycle somehow. It’s tricky.

CD: One thing is: if you and your friends – For one thing, you can always stand up for friends that are being bullied.

R: Yes. That’s a lot easier than doing it for people you don’t know.

CD: It’s easier to say “Oh, people are saying mean things about my friend Jess, so I’m going to tell them “no, you guys, this is not okay.”

R: Or you can say “I’m not going to talk to you guys if you say mean things about my friend Jess.”

CD: Exactly. And maybe it’s also a good thing if your group of friends makes a decision that you’re all going to stand up for each other. So everyone knows – in an explicit way – that you guys will always help each other out. That way, if you’re being bullied, R., you know that you can go to your friends Joseph and Tom and Miguel and say “Guys, can you help me?” And you’re not embarrassed, and you’re not worried that they’ll say no, because you guys have already talked about it.

R: Yeah. Exactly.

CD: And even starting with a couple of friends that you know you guys have decided amongst yourselves that you will stand up for each other – that helps. Then when you as a group feel safe – and when you feel comfortable, you can say “okay, that guy over there isn’t our friend, but we know him and we like him. People are calling him gay, so we’re going to go over there and say “not cool guys.” In a less cheesy way. Because your sister is the king of cheese.

R: I mean, that’s the only way I’ve seen bullying get stopped. When friends stand up for you, or when other people tell the bully to stop.

CD: That’s true: from all the conversations we’ve had, and from everything you’ve said to me, it seems to me that the only way bullying will stop is through peer-to-peer techniques. I don’t think a top-down, teacher-and-administration effort will work.

R: It’s never really going to stop. I think we need to reduce it dramatically, and do a lot more to help the victim. It’s a little like – hunger will never stop –

CD: – but that’s not a reason not to try and make it better.

R: Exactly. And I agree – I think adults imposing a program is not very effective at all.

CD: Our stepsister* was telling us that kids actually bully other kids using the anti-bullying program. Like, they make fun of the program, and then they make fun of other kids using the program – or kids who participate in the program, or who try to follow the lessons –

[*Our stepsister is in R.’s grade, and goes to the same school]

R: Yeah exactly. Because they’re like “that’s so stupid.” It’s just another weapon.

CD: So I guess the question I have is – I’m not really an adult, but in your life, I’m sort-of an adult. And as a sort-of adult, I can completely understand that if you were a teacher or another adult, you would want to help kids. You would want so stop bullying. So do you think there are ways to do that without making it worse? Without just saying “bullying is bad, don’t do it?”

R: Yeah, I think there are better ways teachers can help. You know, I think one of the big lies adults tell you in middle-school and high-school is that they’re always there for you. And sometimes, they’re really not.

CD: Yeah.

R: One thing is, if they could make the victim feel safer in reporting. It needs to be confidential, or the victim might be afraid that they won’t be able to tell the teacher without being harassed by the bully again. They need to change the way harassment forms work, so that kids are more willing to confide in adults. Because right now, we feel like if we tell a teacher, it won’t be confidential. And that’s really frightening.

CD: It probably keeps students from looking for help.

R: Exactly. Harassment form – people are embarrassed to do it. We need to make them realize that they shouldn’t be and that –

CD: It happens to everyone. Or – you’re not a bad person for reporting it. Or a weak person. Being bullied is not a sign of weakness.

R: Exactly. And also: a lot of people say “Oh, everyone goes through bullying.” And what they mean is “it’s not a big deal” But even though everyone goes through it, that doesn’t make it –

CD: 0kay.

R: Yes.

CD: Everyone used to get smallpox, but we still got rid of it.

R: Yeah, if everyone does it, it doesn’t make it good.

CD: Bullying can have really bad long-term effects on your psychological health.

R: And your emotional health.

CD; Yes. And on society at large. Because we don’t want to be a society that’s just bullies and victims.

R: That’s really really really big. I’ve heard my parents say before: “Oh, it’ll die down eventually.” And I think that’s… *in a very quiet voice* bullshit.*

[yes, my twelve year old brother swore. Everyone clutch your pearls]

CD: It kind of is bullshit. In my experience, bullying is everywhere, not just in school.

R: It’s just horrible. I really hate when people say that, because it doesn’t make the problem better. It just makes the person feel like a jerk – like “oh, why am I complaining, it happens to everyone.”

CD: There are some things where “it’ll die down” is vaguely legitimate. I’m trying to get an example here – if you’re a girl and you’re getting period cramps, you’ll get that once a month and it will die down eventually – actually, I’ve changed my mind. Even if you get period cramps once a month, that doesn’t mean you shouldn’t ever complain about it.

R: Also, bullying is really different from period cramps.

CD: …Yeah. Bullying is like not period cramps! You heard it here first, folks.

R: I remember I was in Paris, and I was talking about some people bullying me, and my parents’ friends said “oh, that happens to everyone. They’re just going through a phase. Everyone goes through a phase where they bully people, and she’ll get over it.”

CD: That’s still not okay.

R: That’s still not okay. And I was like – blink. blink. What? How does that make sense?

CD: Yes. And like we’ve been saying, there are really negative results that come from bullying. For example, if people are bullying you by calling you gay – first, it sets up a thing where people who are gay are uncomfortable coming out. Which is completely unfair, because I’m not uncomfortable coming out as straight, and there’s nothing better or worse about being gay than being straight. No one’s going to bully me for being straight. And of course, the other problem is that bullying people by calling them gay makes it seem like being gay is a bad thing. And it’s not; it’s just a fact of life.

R: Yeah, exactly. It’s just a fact of life. Its like – I have curly hair. And that’s a fact of life.

CD: It’s not something to be ashamed of.

R: That’s what bullying does. It makes people feel ashamed of what they do, what they wear etc.

CD: Who they are. What they like. Who they like.

R: So there are a lot of problems with bullying. And there are not a lot of solutions that are very effective.

CD: Well, I think a lot of the solutions that are effective are very long term

R: But we also need some short-term solutions that help the victim and the bully. While the long term effects are working out. Or else the victim’s just going to keep getting hurt.You know – asking their friends if they’ll stand up. Or asking their friends to just be with that kid and listen to them.

CD: I think that’s somewhere where teachers can really help. Providing a safe space so victims feel safe to come to them and say “Hey, I’m having a real problem with bullying.” And sometimes the only thing the teacher will be able to do is listen, because doing something else would break confidentiality, or would make the student unsafe. Not being able to do anything except listen – that’s not great. But at the same time, it’s really important because listening tells the victim that what they’re going through is legitimate. And it means they have a place can talk.

R: We really don’t have that right now. I don’t have a lot of people I can talk to – especially adults. And I’m not really being bullied, so I can’t imagine what it’s like if you’re being bullied all the time – not having anyone to talk to.

CD:  The other thing is – the teacher can also be the person who says “I know R. and Joseph and Miguel are really anti-bullying, so if you talk to them – or I can talk to them for you – I know they’ll go with you to the cafeteria where people are making fun of you and they’ll eat with you.”

R: Exactly.

CD: I think we have to put a lot of trust in students and in kids to get rid of the bullying problem. That doesn’t mean we can’t help them, but it can’t be something we impose. It does mean that –

R: It has to be the students and the teachers working together. You know, we could implement a program where students who are being bullied at lunch – other kids can eat with them. And other students can volunteer to help other kids with bullying problems. Mostly, I think teachers need to get closer to students. Because right now, I don’t think people trust them. They say that you can come to them, but it doesn’t really feel like it. I think that’s the problem.

CD: I was thinking – you haven’t read Tamora Pierce’s Protector of the Small series, right?

R: No.

[everyone should go read Protector of the Small now, if not sooner]

CD: It’s Pierce’s third series. It’s about Keladry, who is the first girl to openly try for knighthood – because Alanna dressed up like a boy during her training, right? And Keladry is bullied when she’s a page, because almost everyone is bullied their first year as a page.

R: Right.

CD: But in Keladry’s first and second years, she goes out and she fights the people who are physically bullying other people. And all her friends says “why are you doing this? It happens to everyone, everyone goes through it So why are you doing this? It’s called hazing.” Kel says: “I know that, but it’s not okay. People are getting pushed, people are getting beaten, people are getting seriously hurt and humiliated, and it needs to stop.” And eventually her friends start to join her, so then you have patrols of two or three people roaming through the halls and stopping bullies. And more people join – five or six, and then seven and eight. It takes time, but it becomes an entire movement of her friends who are like “You know what, at first I didn’t see why this was important, but now I do, and now I’m going help out.” It took a lot of effort for Keladry to do it, because she had to do most of the work at the beginning, and she got beat up a couple times. But at the end, the movement was so big that all people had to do was go out and check the halls once a night, and that was it. The bullying problem was over.

R: And I’m sure it really helped the kids who were being bullied.

CD: Yeah, because what would happen is they’d chase the bullies away, and then they’d say to the kid who was being bullied: “Hey, you want to come study with us?”

R: Yeah. Those are probably the most effective solutions. Because I think what makes it worse for me – and for other people who are being bullied – is feeling like you’re alone. Or like other people won’t help you, or like the school doesn’t care.

CD: Yeah. Like your problem isn’t legitimate.

R: Exactly. So that’s part of the solution: breaking the isolation, and making people feel less ashamed. And let them know that there are people who are there for them, and who will help them.
The long term solution is the one where people take a stand, and where they try to help and participate in the work of ending bullying. And the short term solution is teachers supporting kids, and making sure they have resources, and places where they can talk and feel safe.

CD: Is there anything else we need to talk about? Ideas, stories –

R: I can’t think of anything.

CD: Actually – I remember a story on This American Life, where there was a kid with anger management issues because he had a bad home life. And so at school, he was a jerk, and his classmates made fun of him all the time. getting bullied all the time. One day, the other students were really teasing him, so the teacher sent everyone out of the room except the three most popular girls. Not necessarily the most popular kids, actually – kids who are sort of like you: they’re diplomatic, and everyone likes them, but they’re not necessarily the most popular. And the teacher sat them down, and she said “Look, this is why Brendan – I made up that name – is angry all the time. First, please don’t tell anyone. And second, I need you to help me stop people from bullying him.”  when the other students came back, the girls started working with their friends, and saying “No, we’re not going to make fun of him.” And that eventually made the bullying stop.

R: That’s a really good example of how a solution like that would work. I’m not surprised it was so effective. It takes a group of people who decide to do it. Who decide to start a movement. We need a movement.

CD: Yes. We need an anti-bullying movement from the ground up.

R: Exactly.

CD: Okay. That’s a good note to end on. This is us signing off. Everyone: don’t bully.

R: Yes. It’s not good, as the teachers say.

CD: And if you’ve been bullied, there are resources. And we will find them.

***

There are two things that really resonate with me from this interview. One is:

“You know, I think one of the big lies adults tell you in middle-school is that they’re always there for you. And sometimes, they’re really not.”

And the other is:

“Being bullied is not a sign of weakness”

We need to fix the first problem. We need to be there for those who are being bullied. We need to stop dismissing it as drama, or as something everyone goes through, or as a phase they’ll get over, or as “character building.” We need to stop pretending that kids who complain about bullying are “oversensitive” or need to toughen up. And we need to stop ignoring the problem just because it happens to kids. It’s all well and good to say “it gets better.” But we need to make it better now.

If all you can do is listen, do that. I cannot stress how important listening – or just being there – is.

And we need to make sure everyone knows the second part: Being bullied is not a sign of weakness.

Thanks for reading, everyone.

Note on Comments: I’m usually pretty light on the moderation – so far, I’ve never deleted a comment. I don’t even mind people who insult me personally. However, if you go after my brother, I will stuff your comment up into the place where the sun don’t shine so fast I’ll set a new speed record. Frankly, if you go after any of the bullied kids we talked about – or bullied kids in the abstract – the same thing will happen. And homophobia? Not an option. You have been warned.

Resources:

How to support kids involved in bullying

Where to get help

Trevor Hotline for Gay, Lesbian and Bisexual Youth: 1- 866-488-7386. (Important note: If you are called gay, or harassed for acting/seeming gay, the Trevor hotline will help you even if you don‘t identify as LGBTQ. In other words, the service is not exclusively for LGBTQ teens)

National Hotline for Children and Teens: 1-800-448-3000 (They will help you with bullying problems; sexual, physical or emotional abuse; suicide prevention; school issues; depression etc. They’re wonderful, and very well trained – no matter what your problem, they can help (and if they can’t, they will find someone who can)).

National Suicide Prevention Hotline: 1-800-273-TALK (8255).

If you are being bullied, or if you know someone being bullied, and you don’t know who to talk to, these hotlines will help you. PLEASE call them (or find someone you trust to talk with), even if you think your problem isn’t important, or that it doesn’t count as bullying, or that it’s your fault. Call them.

Unfortunately, these are USA-specific numbers (any suggestions for other countries?) If you know of other resources or other hotlines, please let me know and I’ll add them to the list. I’m particularly frustrated that I can’t find a dedicated national hotline for bullying victims…